S.F.O.T. Message Board

dr in Houston

Lynda — Wed, 18 Nov 2009 16:16:16 GMT

Please , I need a recommendation of a good rheumatologist in Houston .
The patient has had sarcoidosis in the past and may be having a flare up but the PCP does not know of a good referrlal

problems with surgery?

cindy — Mon, 02 Nov 2009 04:00:20 GMT

I have had several surgeries in the last few years where there was excessive fluid production. The doctors have found that the area of the surgery becomes encapsolated and will not close up. One problem took 3 surgeries to get it to heal. I think it is is the sarcoidosis causing the problem. Has anybody else had a problem with encapsolation of a surgery site?

Fundraiser

Renetta Rolad — Sun, 27 Sep 2009 03:34:46 GMT

Tonight fundraiser was so amazing. This was the first time I went to one these fundraiser and I am so glad I did. I have been diagnosed with Sarcoidosis in 2004 and it's been a ride, a long and hard one... But after seeing Rachella play her sax and played the piano. It was breath taking. I want to take my hat off the SFOT... Well done, Well done. This is the best birthday I've had in a long time. Thank you so much for the gift, the gift of music, inspiration, strength and hope.

Renetta

Pain with Sarcoidosis

Jeanette — Thur, 17 Sep 2009 02:25:32 GMT

Is pain common with Sarcoidosis? Only recently has the pain gotton out of control. Does anyone have any suggestions?

Best Regards,
Jeanette

Temperature

Tim — Wed, 17 Jun 2009 19:54:40 GMT

I am having major problems with my temperature going up to 104+ and down to 90 once but usually go's down to 94.
And of course that involves cold shakes before and Dripping wet sweat after the fever.
Can anyone give me some advice PLEASE

Meds

Larkeeda Mcclelland — Mon, 26 Jan 2009 16:21:45 GMT

Hello, I am a sarcoidosis survivor, I am needing information from you.
I am trying to find out information about the Mistress of ceremony that spoke at the fundraiser a couple of years ago, She was a Caucasian lady,that spoke about two different antibiotics hat Doctor could use instead of steroids. I thank you for taking the time to read and respond from the bottom of my heart.

Diagnosed May this year

Pat — Tue, 25 Nov 2008 09:38:17 GMT

Hello everyone! I was diagnosed with Sarcoidosis this spring after months of getting tireder and tired and tireder. My primary doctor did some blood tests and routine check up. I suggested we do a chest xray since I'm a smoker and my husband passed away from cancer 6 months after a physical which DID NOT INCLUDE A CHEST XRay (HMO said it wasn't necessary) He showed me the xray and pointed to a line which I said had been diagnosed a few years ago as a fractured rib following a fall but then I saw a couple of circular spots I had never seen before so he sent it to the radiologist. Radiologist sent back a note to check it again in 3 months. Needless to say, I didn't want to wait so he sent me for an enhanced CT Scan. A day later I was in his office and he said I had Metastic Cancer in my lung to which I said if it's Matastic that means it came from somewhere so lets go find it. To make a long story short, a month later and enough radioactive tests to light the city, followed with a needle biopsy I was diagnosed with Sarcoidosis. I was put on Prednisone (made me feel great for a while). They did the step down thereapy. 2 weeks later I broke out in a rash on my legs which turned into welts, then my arms, my chest, and my back. I was then told to not use Prednisone (which is fine/don't like the long term ramifications anyway) and use Ibuprofen for any "flares". I worked from June till the end of September when I started getting horrendous back aches and headaches. A massage therapist got rid of the back ache but the headaches were crippling. I had lost my insurance so kept taking Excedrin and aspirin and then Ibuprofen and finally my specialist (who I told I couldn't pay to see) referred me to an Insurance from the state. I now have it on my brain; I now can either sleep or not sleep....no happy medium...and it will be the 4th of Dec before I can get the test to tell the scope of the new "invasion". The new doc said keep taking the Ibuprofen. It does help. Anyone have any of the same stuff (I/ve
just given you the "highlights) Please email me at pat@pjeller.com.
Thanks. I need advice and information and facts. Does having it in your brain mean I can potentially loose my mind?

Could Sarcoidosis be inherited?

Laronda — Thur, 04 Sep 2008 02:30:26 GMT

It seems that there are several of my family members with sarcoidosis on my mothers side of the family. My sister has it, my mother's baby sister,my grandmother two brother's each has a daughter with sarcoidosis.

My grandmother was born in East Texas..San Augustine,TX. I remember going their servile times, the house she was born sits near a lake, and I also remember we all had to drink "Well Water". I'm wondering if something in the water could cause all this damage.

Local Doctors

Tom — Fri, 09 May 2008 05:43:24 GMT

Hello, thank you for your site. Is there a list of Sarcoid specialists in the Ft Worth area?

Welcome!!!!

Laronda — Mon, 03 Sep 2007 04:31:46 GMT

Hello, I would like to welcome you to our message board...have fun.